John Foard - Board of Trustees Chair
Viraj Desai - Board of Trustees Vice Chair
Kulpin Desai - Board of Trustees Secretary
Patrick O’Connor - Board of Trustees Treasurer
Nalisha Foard
Crystal Draper
Grant Goodwin
Cadie Gasque
Chris Webb Scott Sofsian
Rett is as prevalent as Huntington’s Disease, Cystic Fibrosis, and ALS.
A child is born with Rett Syndrome every 90 minutes.
Approximately 96% of cases arise due to spontaneous mutations in the MECP2 gene.
90% of kids who have Rett are girls.
Rett Syndrome strikes all racial and ethnic groups.
Children with Rett lose skills they’ve acquired between the ages of one and three years.
